Things That I Like

My Family (Love them)
Coffee (Yummy!)
Holidays
Reading a good smutty trash book
silly magazines
boots
Levis
Music
I secretly like talk shows even though i bitch about them, but NOT Springer
babies
my bathroom
crispy apples
my car (love it)
Sun shine and 65 degrees
loud fast cars. should not be loud without being fast
nice smells
quiet time
Blue
comfy clothes
shopping
good hair days
cooking
a nice clean house
when my kids are playing together not fighting
pink roses
hot baths

You're Killin' Me Smalls

Today was a complete son of a bitch of a day. I fell asleep at 6 am. That was my bed time for last night. My darling little Princess of a daughter woke my up at 10:30 and my body reminded me that I have a demon living in side of me. Everyone has those days where everything you touch turns in to flaming piles of dog shit, I know. 2 PM found me throwing a literal temper tantrum in my back yard and then I came in and threw things. A lot of them. Rule #1 as a Lupie. DON'T GO OFF YOUR CRAZY MEDS! I have a date with my Cymbalta first thing tomorrow morning tomorrow afternoon when I get up. So when did the switch over happen here between being a Princess Mommy, and a Lupus Warrior Princess? About a year ago I was diagnosed with SLE. This winter has been rough! I've known for over 6 years that something wasn't right with my body, it just takes finding the right Doctor and having blood work done at exactly the ri...

Hitting the Wall...Crash & Burn

Most days I can flow along like nothings wrong, even if I'm feeling a little rough around the edges. I can move past the brain fog, push past the aches and pains and just live survive. I may get a little cranky, quiet or overly perky. It just depends on the level of what ever is going on. Then there are the days where you're swimming along, just floating down stream and someone hits the flusher and your whirling away. It happens fast and you can't stop it. Things start hurting, I get so tired and my body slows down to the point that I can literally count my heart beats because I can feel it. Heavy arms and legs, dizzy head, the works. This is a little harder to motor through and usually where I have to SAY something out loud about how I'm feeling. Today was one of those days. The best I can describe is it cruising along at the speed limit and suddenly spinning out and hitting the wall. Mos...

Trump Passes law That Includes Over $14 Million for Lupus Research!

SEP. 28, 2018 President Signs Bill Providing $14 Million for Lupus Research President Donald J. Trump signed into law today a fiscal 2019 spending package that includes more than $14 million in new funding specifically for lupus research and education. The House of Representatives and Senate already approved the spending bill, which also provides a significant funding boost to a record $39.1 billion for biomedical research through the National Institutes of Health (NIH). The spending package combines the Fiscal Year 2019 Department of Defense (DoD) Appropriations bill with the Fiscal Year 2019 Labor, Health and Human Services, and Education (LHHS) Appropriations bill. For more details on how this spending bill impacts lupus research and education, please read our earlier post, House Sends Lupus Research Funding to President’s Desk. This funding victory would not have been possible without the efforts of our lupus advocates from across the country, the Congressional Lupus C...

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