Trump Passes law That Includes Over $14 Million for Lupus Research!

SEP. 28, 2018

President Signs Bill Providing $14 Million for Lupus Research

President Donald J. Trump signed into law today a fiscal 2019 spending package that includes more than $14 million in new funding specifically for lupus research and education. The House of Representatives and Senate already approved the spending bill, which also provides a significant funding boost to a record $39.1 billion for biomedical research through the National Institutes of Health (NIH).

The spending package combines the Fiscal Year 2019 Department of Defense (DoD) Appropriations bill with the Fiscal Year 2019 Labor, Health and Human Services, and Education (LHHS) Appropriations bill. For more details on how this spending bill impacts lupus research and education, please read our earlier post, House Sends Lupus Research Funding to President’s Desk.

This funding victory would not have been possible without the efforts of our lupus advocates from across the country, the Congressional Lupus Caucus Co-Chairs (Rep. Thomas J. Rooney [R-FL], Rep. William Keating [D-MA], Rep. Ileana Ros-Lehtinen [R-FL], Rep. Eddie Bernice Johnson [D-TX]), House Appropriations Committee Chair Rodney Frelinghuysen [R-NJ] and Senate Appropriations Committee Chair Richard Shelby [R-AL] who championed the funding for these critical programs.

Please follow us on Twitter and Facebook, and sign up to become a lupus advocate to stay up-to-date on the latest lupus news from Washington and to learn when your outreach to Congress can make the most impact in the fight against lupus.

You're Killin' Me Smalls

Today was a complete son of a bitch of a day. I fell asleep at 6 am. That was my bed time for last night. My darling little Princess of a daughter woke my up at 10:30 and my body reminded me that I have a demon living in side of me. Everyone has those days where everything you touch turns in to flaming piles of dog shit, I know. 2 PM found me throwing a literal temper tantrum in my back yard and then I came in and threw things. A lot of them. Rule #1 as a Lupie. DON'T GO OFF YOUR CRAZY MEDS! I have a date with my Cymbalta first thing tomorrow morning tomorrow afternoon when I get up. So when did the switch over happen here between being a Princess Mommy, and a Lupus Warrior Princess? About a year ago I was diagnosed with SLE. This winter has been rough! I've known for over 6 years that something wasn't right with my body, it just takes finding the right Doctor and having blood work done at exactly the ri...

Conversations that we should not have to have in our daily lives

So, I was perusing Facebook yesterday morning while having my coffee like I always do (when the baby lets me) and I ran across a status by a lady in my neighborhood saying that she was approached at a stop light by someone in another car trying to get her to pull over. They followed her on to the freeway, continuing to harass her and chase her down. It was midnight and I am sure she was scared to death. She said that she called 911 and they sent an officer to her location and the person took off, wrecking farther down the road. Later in the day, hubby and I went to take my teen boy to his girl friends house so that they could smooch or whatever (I don't want to know). On the way home I brought up what I had read and we started talking about what I should do if the situation ever came up. By what I should do, I mean what I should do after I piss my pants. We go over the whole thing about defensive driving, hit the brake, let them pass me then bump...

Paw Patrol, Mom Shaming (again), Booty Shorts and Wolves

Well guess who fell asleep at 10 pm! I will give you a hint, it was not me! Here's to hoping she doesn't turn it in to an hour long nap like the other night. I have a pretty good feeling I may drop my basket and run screaming through the neighborhood stark naked and scare the neighbors. Might get a free ambulance ride and some drugs though, so it's all good! Just kidding, I have to pay my dealer like everyone else! OK OK, now I'm kidding, I'm too broke for that... but if I wasnt ... So this kid..all she wants to do is watch Paw Patrol, or play with her Paw Patrol figurines or stuffed animals or play in her Paw patrol tent. They are cute, I totally get it. But, she has these pajamas, OK...Little boy pajamas, and I don't give a shit if they are boys or girls or what, I am just setting the stage here. My Threenager Princess has been wearing these freaking red Paw Patrol pajamas for THREE days. She will not take them off. I ...

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